The years since then continue to have ups and downs with many long hospital stays, feeding tubes, surgeries, and sepsis. Seven years ago, I was on a permanent feeding tube unable to eat anything. We needed an intervention to save my life. An experimental surgery for my condition would involve a colectomy and resulting ileostomy.
My Ostomy has Saved My Life
Oscar is an extremely overactive ileostomy which has meant in the past many central lines but I continue to struggle with sepsis.
For the past 6 months I have been reducing my fluids and trying to teach my body to reabsorb fluid. This has been difficult and has included episodes of severe dehydration…so I increase my fluids with peripheral iv's and try again!
I am still learning how to live but I am proud to have Oscar because my ostomy has given me the gift of life.
A husband, daughter, dog, and family I absolutely adore.
A career in education and health that I am extremely passionate about.
A PhD that will contribute to literature about living with a chronic illness.
Being an advocate for causes I truly believe in #ostomy #chronicillness and #fertility
I will continue to pursue all of my aspirations. I know alternate paths are my reality but I believe in the power of sharing stories that deviate from the norm.
My life continues to require health support and accommodations because with DIGITS there are some very real needs that I have, but I believe I can create the life I desire. I know this because that is exactly what I am doing.
I have an ostomy. I have a chronic illness. I am happy!
My ostomy has giving me the gift of life but it is up to me to fulfill my dreams.
Your Woman with DIGITS