before you know it you are not sure if anything will be right again? Last week
was definitely one of those weeks. It started with receiving health news that I
did not want to hear followed by numerous other things all going wrong! Just
this morning I said to my husband in response to all of the whoopla surrounding us“It is a chaos around here!” and he replied with “Is it really chaos around us or are you just chaos?” And with that I laughed and said “I just don’t know!”
The health news I received was by far the most upsetting. I was left feeling frustrated, completely exhausted and wondering how to remain positive. With my birthday looming I was really not impressed with the idea of celebrating at all. All I could think of was all the things going wrong and my health being at the top of the list. So many years of continuous health struggles and the battle continues leaving me feeling broken. I was sinking and I knew I had to take a step back and ground
I am not broken, nor do I need to be fixed. Living with all of the medical interventions, technology, and strategies is my natural state. It is natural for me to have Oscar, Hope and all of the other health support I require. I need to stop thinking of my body as a machine that is continually breaking down and/or malfunctioning. Help and support is accessible and I hope to be more mindful to see the beauty in all of the assistance I have available, even if it is a little chaotic!
There is no way I would have ever thought my life as I am about to turn 29, would include so much that I never would have EVER anticipated.
And number 1 is: Finding ways to live with DIGITS.
The most interesting thing about living with DIGITS is the constant need to adapt. DIGITS is forever changing and advancing; if only DIGITS would slow down a little bit. But for right now, I am doing the best that I can and that is enough. Some days I feel completely defeated but when I take the time to reflect, I remind myself it is ok, and then the light begins to shine a little brighter!
I thought I would share with you my homemade Ostomy and Stoma family cookies, I hope they bring a smile to your face as they do to mine!
At the top of my Birthday Wish List was Awestomy’s undergarment shorts!