But, this new life didn’t mean I wanted to give up what I have been working towards. I wanted to continue my Ph. D. but needed to find a new way. So I started looking into different program formats that would fit into my life. Instead of me fitting my health around school and work, I know now I need to fit school and work around my health. Fortunately, I was able to find a program, apply, and be accepted.
The unique feature of the program I was accepted into includes a summer residency. So prior to my application, I ensured with my nurse that it was possible to transfer my care for the month of July without any major problems.
My husband and I had a little road trip this past week and he dropped me off in residence along with all of my supplies for Oscar, Hope, and specialty foods that I can eat (just to be safe). Needless to say, our car was full.
The week has started off great! Lots of work and I won’t lie, and I am pretty wiped but I am really enjoying this so far.
The obstacles I have encountered have come from issues in transferring my care. My nurse at home had notified all of the proper channels well in advance. But nothing happened and all of a sudden at the end of last week, it was a rush to get the proper documents in. Since then, everyday has been a new set of phone calls between pretty much everyone involved in my healthcare. As of tonight, all of the issues have been ironed out and we are good to go. But my disappointment remains, “why does this need to be so difficult?” I just don’t get it sometimes. All of the phone calls, messages, documents needed are such blatant reminders of how difficult it is for me to breakaway even for just for a little while. This is not to sound ungrateful for the care I receive but more of not wanting to be continually reminded of my needs, limitations, and devices implanted in my body. This has been discouraging, disappointing, and stressful. I was really hoping for this month would start off differently, but this too will pass and tomorrow is a new
Now I know what documents I should always have available to me to avoid this from happening again. So I guess living in res isn’t quite as simple as I thought, but then again, nothing is really simple about my health. So friends, I guess we will have to wait and see what the rest of the month has to offer.
Your Woman with DIGITS