Knowing what having DIGITS and having a newborn was going to be like was completely unknown to me. Although I still have many needs living with DIGITS, life is so much better! I know there are down times and days, but our daughter has helped heal a part of me that I didn't think was fixable.
I thought I had accepted and adjusted to life with an illness but as I think to how I viewed my body, I know I still felt I was broken. There was something within me that wasn't right, I was still living with a chronic illness. By having our daughter I have realized that I am not broken; I am there for our daughter-- every day. She doesn't mind when I change Oscar or am hooked up to my IV. My port, Hope doesn't get in her way and she spends much time looking and observing it. Life is pretty amazing!
But then there are times when she cries through my dressing changes, Oscar leaks at the worst time, and I am just plain exhausted or not feeling well. I feel guilty that she is suffering because of my daily needs as a result of DIGITS. As we both settle down together with cuddles from an upset, I always feel we will get through this together.
So for now we are learning together. Learning a routine, learning patience, and learning together our life with my chronic illness.
Your Woman with DIGITS