One night last week, my spirit was really beginning to feel defeated and I couldn't quite put my finger on the disappointment I was feeling aside from being unwell. And then, it hit me...in all this time that I struggle with DIGITS, what is most alarming is, I am not getting better. Yes, I am learning how to manage DIGITS better and my most recent visit to the doctor revealed that we needed to increase my meds and IV fluids. But the most frustrating is that over time I am not getting better and DIGITS keeps getting worse.
Sometimes I let my mind wander and I wonder what it would be like to wake up and DIGITS be gone. And the truth is, I will gladly live with Oscar but if the symptoms of DIGITS were gone...what a wonderful dream come true. You know, at this point, I would be very content if DIGITS would just stop progressing. I feel so full of life; I don't understand how my body just keeps deteriorating.
My husband and I planned to “redo”our anniversary from last year because ours was disastrous from me being extremely unwell.
I am so happy to share we had a wonderful evening at the Jays game and I was very lucky to have my pic with Ace with the Toronto Blue Jays.
Of course, I was wearing my “This is Where My Ostomy is” tshirt!"
Your Woman with DIGITS