1. The illness I live with is: Diffuse Irritable Gastrointestinal Tract
2. I was diagnosed with it in the year: 2007.
3. But I had symptoms since: 2004.
4. The biggest adjustment I’ve had to make is: relearning how I live my life and the ways in which I pursue my dreams.
5. Most people assume: I will get better.
6. The hardest part about mornings are: knowing all of the extra things I need to do to care for my body as a result of my illness and realizing I have been up to
the bathroom numerous times throughout the night.
7. My favorite medical TV show is: none, these shows don’t sit well with me or my
8. A gadget I couldn’t live without is: I have a few, port-a-cath, ileostomy, IV pump and pole.
9. The hardest part about nights are: getting comfortable and always having to
empty my bag.
10. Each day I take 14 or more pills & vitamins.
11. Regarding alternative treatments I love Reiki, yoga and
12. If I had to choose between an invisible illness or visible I would choose: to me it isn’t about whether it is visible or invisible, it is about people knowing what DIGITS is
13. Regarding working and career: I love being able to work but my work career
has definitely been on and off. I have had to step back and really evaluate what
my priorities are. For me, working is an addition to my life. It is really
challenging to stick to this and relate to others.
14. People would be surprised to know: I am pursuing my PhD and am focusing on the lives of those with chronic gastrointestinal illness.
15. The hardest thing to accept about my new reality has been: the effects my illness has on my husband and family.
16. Something I never thought I could do with my illness that I did was get PREGNANT!!!
17. The commercials about my illness: there aren’t any.
18. Something I really miss doing since I was diagnosed is: playing sports and
19. It was really hard to have to give up: my independence.
20. A new hobby I have taken up since my diagnosis is: yoga and meditation.
21. If I could have one day of feeling normal again I would: I have no idea, this is so hard to imagine. Spend the day with my family.
22. My illness has taught me: to be patient and really think about what is most important to me.
23. Want to know a secret? One thing people say that gets under my skin is: must be nice not to work.
24. But I love it when people: know what an ileostomy is.
25. My favorite motto, scripture, quote that gets me through
tough times is: one day at a time.
26. When someone is diagnosed I’d like to tell them: it will be ok, and we will figure it out together because you are not alone.
27. Something that has surprised me about living with an illness is: how I have learned to live with DIGITS.
28. The nicest thing someone did for me when I wasn’t feeling well was: curled up and watched a movie with me.
29. I’m involved with Invisible Illness Week because: sharing and awareness are so important!
30. The fact that you read this list makes me feel that I am making a difference in the lives of those with chronic and/or invisible illnesses.
Your Woman with DIGITS